‘NHS’ data grab

Not my medical records, though. I feel they are fundamentally quite different to, like, my credit score. This includes sexuality, sexual history, mental illness etc.

I have disclosed things to my GP that my friends and family don’t know. I did this on the understanding it was information that would be used for my care.

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I know what you’re saying but I still wouldn’t be surprised if that stuff wasn’t already out there. The NHS don’t have a very good track record of following best practices, maintaining their IT systems or keeping them secure.

Up until now, that whole record only sat at your local GP. It’s possible someone hacked a local GP at some point, but we’d probably know about that if it happened.

It has been a while since I’ve been to a GP but I’m sure they send information between themselves, to the hospital, specialists and so on.

Anyway, I agree with you there should be an opt out :slight_smile: I was just saying that if it’s a pain to do I probably won’t bother.

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Fair enough. I think most people will think the same (actually I think that’s the plan!)

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I read it the same way as you.
I think the NHS one is to stop them sharing the data with 3rd parties and the GP one is to stop your doctor sharing your records with NHS digital (and therefore the same 3rd parties)
Like you, we have done both just to make sure.

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indeed, but also, I’d put ‘NHS’ in inverted commas. It’s about sharing them with ‘NHS digital’, which is not a part of NHS England, Scotland or Wales, and used to be called something else, until after it’s last failed data grab (care.data) it got ‘rebranded’ with the NHS name and logo to make it seem friendlier

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No I’m not

I don’t personally see a point. Your name and address is never shared and anything marked as confidential such as gender reassignment won’t be shared so it’s impossible for anyone to know who’s information is who’s.

Thanks for putting it correctly :+1:

Nope

Any company can already buy your info and have always been able too. It even tells you this on the nhs site.
Essentially details that can identify you must be removed but as soon as it’s removed anyone is able too do as they wish.

Also
There are tight rules and contracts proposed that will prevent recipients of the data doing their own work to re-identify patients – for example, by combining bits of data with information gleaned from social media. Experience tells us that it would be naïve to think rules – or even the threat of legal sanction – would prevent this activity if there were profits to be made.

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If you’d read the thread you’d see that the entire point of “pseudonymised” is that the data can be recovered and de-anonymised.

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But it can’t.
The site even proves this will never happen plus in the tiny tiny tiny chance it does you’ll be eligible for millions in compensation? I’ll rather let my info out and get money?

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The chances of that are extremely low

How do I opt out?

By googling.

You would be taken to this link National data opt-out - NHS Digital

I was expecting a Let Me Google That Fo You link

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With the form I posted in the OP and emailing it or posting it to your GP.

The national data opt out link just posted is a different thing. You can opt out of that if you want too.

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